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Gracey Stanton with update

Gracey Stanton with update

Funds Raised:
R 73 661
Fundraising Target:
R 200 000

Personal message

I am mother to Slade and the grandparent to twin girls Gracey and Emryn.

Ashley and Slade Stanton conceived what they thought were twins however a third heartbeat was found by the Gynecologist and subsequently referred for a special scan which took place on the 9/5/2023 at the Fetal Assessment Centre. The scan revealed triplets, two twin girls in a separate placenta to the boy, thought to have Twin-to-Twin Transfusion Syndrome (TTTS). The doctor advised Ashley to see a specific specialist in CT at Panorama Mediclinic (only he could perhaps restore normal circulation to the twins). This trip was undertaken however, Dr Pistorius confirmed unequal placenta sharing of the twin girls and not TTTS (Emryn and Gracey).  The boy, Sagan was healthy in his own placenta.   Gracey was much smaller than her sister, we wer told unlikely to survive to term. If he tried to intervene it could induce the birth of all three and they could die as it was early and so all we could do was monitor, hope and let nature take its course. To our surprise, Ashley was able to carry them just long enough until all three were born - Sagan was 1.6kg, Emryn 1.3kg and Gracey 804kg.

Tragedy struck when unfortunately, Sagan contracted a hospital acquired bug resulting in pneumonia, and he died 11 days after birth.  It devastated the family but we did not get time to mourn as both girls were also sick, Gracey almost died also due to negligence and and we had them moved to another hospital immediately. As soon as they we admitted to Unitas Gracey turned around in 24 hours, Emryn began to thrive and went home not long thereafter.  As Gracey had a low birth weight she remained in Neonatal ICU for four months however when feeding was attempted she could not swallow and an MRI confirming a diagnosis of Pontocerebellar hypoplasia (PCH) was confirmed. 

This is a group of VERY rare heterogeneous conditions characterized by prenatal development of an abnormally small cerebellum and brain stem associated with profound psychomotor retardation. Clinical features vary but associated with profound intellectual disability, delayed or absent psychomotor milestones like swallowing. Most times the disease is fatal early in life - life span usually ranges from months to 6/7 years, rarely 20-25 years depending on the type.
 
This family were definitely not prepared for three children and definitely not a tragedy complicated by a child with very rare life threatening illness.  They have not had time to grieve nor prepare financially to cope with this. 
 
While Emryn is healthy she is premature. They are both 7 months old according to birth date but actually only 4 months as they should have been in the womb longer. This means that both of them need occupational theraphy. Gracey will need it for a long time due to her brain issues. Gracey will need speech theraphy to try and encourage swallowing and talking. She cant smile or eat, she gets fed through a PEG tube from her stomach. She requires oxygen 24/7 and has to be suctioned all the time while she is awake as she cannot swallow her saliva.  Her airway is a constant worry and she needs nursing 24/7. Her consumables, formula, nursing, therapy etc are costing a fortune and medical aid does not cover everything. 
 
Since birth 20 July 2023, this couple has driven from Edenvale to Unitas everyday to visit Gracey which cost a fortune in petrol. Finally she came home approximately a week before Christmas but just a day before had to go back to hospital for infection treatment. Then in early January she came home again - medical aid has only paid for 3 weeks nursing and since then the couple has had to struggle on their own.  Ashley was supposed to go back to work in January but had no choice but to resign because if they had to pay a nurse and someone to look after Emryn, it would add up to more than her salary so whats the point (and she has been trained by the hospital to care for Gracey).
 
PLEASE, IF ANYONE KNOWS OF A JOB ASHLEY CAN DO FROM HOME, LET HER KNOW. SHE IS HIGHLY SKILLED (SALES MANAGER) AND A VERY HARD WORKER. SHE IS WILLING TO DO ANYTHING - DATA CAPTURE FOR EXAMPLE ETC. 079 720 6065.
 
They get very little sleep with two babies, one that must be nursed 24/7. A dad who has to carry the family on one salary. We are helping as much as we can but we cant carry it all. 
 
Update:  On 26th January 2024, Gracey was rushed by ambulance to Unitas and is in Paeds ICU at Unitas with severe infection on 2 antibiotics and struggling with secretions. She eventually recovered and as of 27 Feb 2024 is back home again but funding  for nursing is very much required. It is not possible for one person to sit in one place constantly 24/7 and watch someones airway and take care of another baby, cook, clean etc etc and also try to find work. Despite this Ashley is an incredible mom who never gives up. 
 
This couple is exhausted and has been through so much.  Every cent you donate helps them to cope and takes just a little more stress off them as they can buy her formula, tubes, oxygen, theraphy etc.  I know this is a big ask but they also really need a second hand bigger vehicle like an avanza or similar to transport both babies to theraphy etc as the kia picanto is just not working.  When you have oxygen, suction, two car chairs, bags, prams etc it just doesnt work.  I know its a big ask but I can only mention it.  Thank you to every one who has helped so far, you dont know what it means to Ashley, Slade and the family. We are so very very grateful.  God bless you. 
 
 

Donations

  • Feb 04, 2024 - R 500.00 Fees covered
  • "God bless you all 🙏🙏🙏🙏" - Anonymous

  • Feb 01, 2024 - USD $ 57.85 Fees covered
  • "" - Anonymous

  • Feb 01, 2024 - R 200.00 Fees covered
  • "All the blessings in the world!" - Kayleigh Evelyn Kraftt

  • Jan 30, 2024 - R 500.00 Fees covered
  • "" - Hayley Norval

  • Jan 29, 2024 - R 500.00 Fees covered
  • "By His stripes you are healed.❤️" - Anonymous

  • Jan 29, 2024 - R 300.00 Fees covered
  • "All the best to baby and family ❤️" - Anonymous

  • Jan 29, 2024 - R 500.00
  • "Everything of the best for precious Gracey. Sending lots of love and prayers. Charlie and Louise" - Louise

  • Jan 22, 2024 - R 100.00 Fees covered
  • "Xxx" - Mirelle

  • Jan 10, 2024 - R 350.00 Fees covered
  • "💕" - Anonymous

  • Jan 03, 2024 - R 1 000.00 Fees covered
  • "Praying for miracles because we know only He can! 💗" - Natalie

  • Jan 02, 2024 - R 500.00 Fees covered
  • "Sending prayers for comfort and strength. God, please be with this family -Amen." - Annie du Plessis

  • Jan 02, 2024 - R 1 000.00 Fees covered
  • "Praying for Gracey to be home soon. God bless you all on this journey of faith and trust in our miracle working God 🙏" - Alison Westner

  • Dec 29, 2023 - R 1 000.00 Fees covered
  • "Little Gracey is going to be a testimony 🌹" - Talitha

  • Dec 28, 2023 - USD $ 58.78 Fees covered
  • "Sending you lots of love and prayers ❤️🙏" - N Van Der Merwe

  • Dec 24, 2023 - USD $ 18.93
  • "Good luck to my baby cousin and Gracey 🙏🏻 Hope she’ll get all the help Gracey needs xx" - Anonymous

  • Dec 24, 2023 - USD $ 17.54 Fees covered
  • "Praying for Gracey and the whole family." - Anonymous

  • Dec 23, 2023 - USD $ 87.73 Fees covered
  • ""He sent His word and healed them" Psalm 107:20" - Anonymous

  • Dec 19, 2023 - R 1 500.00 Fees covered
  • "Children are a blessing from the Lord. We pray for healing, peace and joy. Sending so much love." - Osborne family

  • Dec 18, 2023 - R 500.00 Fees covered
  • "praying for you precious Gracey , healing is your portion sweet girl ❤️" - Anonymous

  • Dec 17, 2023 - R 5 000.00
  • "Trusting God for blessings beyond what we can ask for or think 🙏🏼" - Matt & Tay Dos Santos Serra

  • Dec 16, 2023 - R 500.00 Fees covered
  • "Praying for restoration and healing" - Vic

  • Dec 14, 2023 - R 5 000.00 Fees covered
  • "Sending heavenly love and strength 🤍" - Robbie & Hayley 🪽

  • Dec 13, 2023 - R 500.00 Fees covered
  • "PRAYERS FOR ALL OF YOU FROM ALL OF US XXX" - Anonymous

  • Dec 13, 2023 - USD $ 17.12 Fees covered
  • "" - Sian

  • Dec 13, 2023 - R 300.00 Fees covered
  • "❣️" - Anonymous

  • Dec 13, 2023 - R 1 000.00 Fees covered
  • "This journey you guys are on is so hard. I'll be praying for your family! You have a mighty God, he's got you! Big hugs from Nz." - Catherine Cook

  • Dec 12, 2023 - R 2 000.00 Fees covered
  • "Tears man tears! Wishing the family all the best and prayers in this time!🙏🙏 The good people always win no matter how hard it has been." - Anonymous

  • Dec 12, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Dec 12, 2023 - USD $ 849.36 Fees covered
  • "God Bless you sweet family" - Anonymous

  • Dec 12, 2023 - R 325.00 Fees covered
  • "May the good Lord bless and keep you." - Anonymous

  • Dec 12, 2023 - R 325.00 Fees covered
  • "May the good Lord bless and keep you." - Anonymous

  • Dec 12, 2023 - R 500.00 Fees covered
  • "" - Hayley Norval

  • Dec 12, 2023 - R 462.75 Fees covered
  • "" - Anonymous

  • Dec 12, 2023 - R 925.50 Fees covered
  • "" - Anonymous

  • Dec 12, 2023 - R 200.06 Fees covered
  • "" - Anonymous

  • Dec 12, 2023 - USD $ 28.31 Fees covered
  • "" - Riaan

  • Dec 12, 2023 - R 200.00 Fees covered
  • "Keeping this precious baby and her family in prayer" - Shanthinie Francis

  • Dec 12, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Dec 11, 2023 - R 172.00 Fees covered
  • "May our loving God hold Gracey tightly in His loving arms as His healing flows through her little body. Praying for you all." - Anonymous

  • Dec 11, 2023 - USD $ 28.51 Fees covered
  • "Lots of prayers and good wishes in this heartbreaking time." - Anonymous

  • Dec 11, 2023 - R 200.00 Fees covered
  • "" - Anonymous

  • Dec 11, 2023 - USD $ 8.55 Fees covered
  • "" - Anonymous

  • Dec 11, 2023 - R 1 000.00 Fees covered
  • "Heartbreaking 💔 Wishing the family great strength and praying for a healthy, long term outcome. Look to the future of many happier days. Thinking of you all." - Clinton

  • Dec 11, 2023 - R 500.00 Fees covered
  • "🙏🏻" - Anonymous

  • Dec 11, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Dec 11, 2023 - R 500.00 Fees covered
  • "God bless 🙏🏽 C&K ❤️" - Anonymous

  • Dec 11, 2023 - R 1 000.00 Fees covered
  • "Thinking of you - love Gary and Sandra" - Anonymous

  • Dec 11, 2023 - R 100.00 Fees covered
  • "Be strong little Gracey Xxx" - Anonymous

  • Dec 11, 2023 - R 500.00 Fees covered
  • "" - Anonymous

  • Dec 10, 2023 - R 200.00 Fees covered
  • "" - Jeanette Hollmann

  • Dec 10, 2023 - R 200.00 Fees covered
  • "Praying that the universe blesses your family and most importantly your baby girl Gracey, with a lifetime of love, health and happiness xxx" - Anonymous

  • Dec 10, 2023 - R 2 500.00 Fees covered
  • "For the tiniest little superhero I know! Keep fighting little one." - Natalie Matticks

  • Dec 10, 2023 - R 2 500.00 Fees covered
  • "May God Bless little Gracey, and help her with her fight. You have always been strong, keep this up. You are very Special to me." - Robbie Matticks

  • Dec 10, 2023 - R 100.00 Fees covered
  • "Praying for all the family's needs to be met. Full recovery for Gracie's health." - Anonymous

  • Dec 10, 2023 - R 1 000.00 Fees covered
  • "Get well soon Gracy. We want to see you at home with mom and dad" - Anonymous

  • Dec 10, 2023 - R 1 500.00
  • "Xxx" - Anonymous

  • Dec 10, 2023 - R 100.00 Fees covered
  • "Sending prayers and strength your way💙" - Crystal

  • Dec 10, 2023 - USD $ 27.01 Fees covered
  • "Our God Is Able! We Serve a BUT God. There will be continued prayers from Louisiana US." - Anonymous

  • Dec 09, 2023 - USD $ 113.97 Fees covered
  • "" - Anonymous

  • Dec 09, 2023 - USD $ 21.61 Fees covered
  • "🩷" - Anonymous

  • Dec 09, 2023 - USD $ 56.98 Fees covered
  • "" - Anonymous

  • Dec 09, 2023 - R 2 000.00 Fees covered
  • "Praying for 120% healing and restoration 🙏🏻" - Mccauley

  • Dec 09, 2023 - R 500.00 Fees covered
  • "" - Vic Emmanuel Abdol

  • Dec 09, 2023 - R 1 000.00 Fees covered
  • "God has you Gracey and family in the palm of his hands. Praying for your complete healing and full health." - Anonymous

  • Dec 09, 2023 - R 500.00
  • "Sending you love 🥰" - Ryan & Rachel

  • Dec 09, 2023 - USD $ 10.55
  • "You are such a warrior little one 🙏" - Anonymous

  • Dec 09, 2023 - R 100.00 Fees covered
  • "Small donation with a heartfelt prayer for this little warrior." - Anonymous

  • Dec 09, 2023 - R 5 000.00
  • "Stay strong little one🙏" - Mason George

  • Dec 09, 2023 - R 500.00
  • "God will provide strength" - Tali

  • Dec 09, 2023 - R 500.00 Fees covered
  • "With love xxx" - Anonymous

  • Dec 08, 2023 - USD $ 10.81 Fees covered
  • "Praying for this little angel🤍" - Nicole

  • Dec 08, 2023 - R 500.00 Fees covered
  • "Praying for you All!. Hang in there. The Lord will provide" - Anonymous

  • Dec 08, 2023 - R 200.00
  • "A small donation that comes with heartfelt prayers for your family" - Allison

  • Dec 08, 2023 - R 100.00
  • "" - Cherish

Statistics

Fundraising target

R 200 000.00

Donations to date

R 73 661.49

Gracey Stanton Campaign