#67give Rare Diseases South Africa
- By: 67give
- Short URL: https://archive.backabuddy.co.za/67give-rare-diseases-south-africa
- Date Created: 9 April 2020
Personal message
What we do:
Rare Diseases South Africa is a registered Non-Profit Organization assisting all patients impacted by rare diseases to access life-saving treatment and supportive care for improved quality of life.
Established in 2013 by Kelly du Plessis from personal need on the diagnosis of her son with Pompe disease. RDSA provides empowerment through patient navigation, advocacy and community engagement.
VISION: A South Africa where those impacted by Rare Diseases access life-saving treatment and supportive care for improved quality of life.
MISSION: To advocate and facilitate engagement between those with the ability to prevent, intervene, treat and provide supportive care for those impacted by rare diseases.
Targets for 67give:
Total target R8040 which means 67 Rare Bears can be purchased.
The #RareBearProject is all about supporting our community. From providing support to our Rare families, to creating jobs and income generating opportunities to the woman of Kya Sands
For every bear that’s sold 2/3rd is paid to the creator and 1/3rd is used to improve the marketing platform and distribution of the overall project to ensure sustainability.
For more information on the project, visit www.rarebearproject.org
67give patrons for this charity:
1) Corne Roux
Statistics
Fundraising target
R 8 040.00Donations to date
R 0.00Rare Diseases South Africa
Rare Diseases South Africa, formerly the Rare Disease Society of South Africa, was founded in 2013 by Kelly du Plessis. Founded out of personal need after the diagnosis of Kelly’ son, it quickly became evident that there was a lack of support and awareness on rare diseases in South Africa.