Help Nigel fight rare syndrome Campaign
Have you ever heard of VEXAS syndrome? The Adcocks hadn't until last year, and the rest of the world hadn't until 2020. It's a debilitating inflammatory disease with limited knowledge and treatment options. Nigel, affected by this syndrome, has experienced attacks in various body parts, including eyes, ears, joints, blood clots, and fatigue. Pleurisy and pneumonia are frequent, along with side effects of cortisone and Myelodysplastic syndrome. Nigel's health decline has led to numerous hospital stays, overwhelming medical bills, and declined insurance coverage for essential medication costing over R30,000 per month.
Nigel's health struggles began in 2018 with autoimmune diseases, followed by squamous cell carcinomas and Myelodysplastic syndrome. Last year, he was diagnosed with VEXAS syndrome, a rare condition. Cataracts, a result of long-term cortisone use, add to his challenges. Medical bills this year alone are close to R1,300,000, and the family seeks donations for past and future expenses. Nigel's wife, the sole income earner, faces the challenge of balancing work and high medical costs.
Nigel's strength and vitality have diminished significantly, impacting his ability to work and engage in community activities. Donations are requested to help ease the financial burden and support Nigel's ongoing medical needs, bringing hope for a better future.
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