Ride for HAE
- By: Janice Strydom
- Short URL: https://archive.backabuddy.co.za/ride-for-hae
- Date Created: 2 October 2021
Personal message
HAE South Africa is a team of compassionate hereditary angioedema patients and caregivers committed to raising awareness, improving time to diagnosis and advocating for access to life-saving medications for all South Africans living with HAE - a rare, potentially fatal genetic disorder affecting 1: 50 000 people.
Neil Kinsley, himself an HAE patient with a family history of the disorder, including his grandmother, father, sister and daughter, will be cycling the 947 Ride Joburg on the 21st of November together with two of his friends, Simon and Barbara Stanbury, to help raise funds used towards improving the quality of life of all patients living with this disorder.
#TogetherWeCan
Donations
- Nov 21, 2021 - R 2 000.00 Fees covered
- "Good Luck guys we love you & be safe " - Lakeside bistro
- Nov 20, 2021 - R 1 000.00
- "Super proud of you guys!!" - Leandri
- Nov 18, 2021 - R 2 000.00 Fees covered
- "Have a great ride!! From the FFS Team" - Formfunc Studio
- Nov 17, 2021 - R 1 500.00 Fees covered
- "My Specials in so many ways, best of luck, this race will always mean something to us all, xx" - Kimmy
- Nov 15, 2021 - R 200.00
- "Thanks so much for riding this for HAE south africa. We on the board are so grateful to you for raising awareness! " - Tamsin
- Oct 05, 2021 - USD $ 281.17 Fees covered
- "Great cause, best of luck. " - Martin
- Oct 04, 2021 - R 1 000.00
- "Ride like the wind" - Penny Stanbury
- Oct 03, 2021 - R 1 000.00 Fees covered
- "#togetherwecan" - Brett
- Oct 03, 2021 - R 1 000.00
- "Proud of our HAE warriors! " - Cass
Statistics
Fundraising target
R 15 000.00Donations to date
R 13 699.96Hereditary Angioedema Association
We are an advocacy group for patients with hereditary angioedema as well as their caregivers, physicians and researchers.
We all come together to create an enabling environment to improve the lives of patients with Hereditary Angioedema in South Africa.
To learn more about us please visit our website