Hope for Kyleigh

Update on Kyleigh's surgey (24 MArch 2022)

Kyleigh did great yesterday during her first procedure in Boston Children's Hospital. She had a cardiac cartherization where her arteries were ballooned and a stent was placed and dual supply was fixed. The procedure was a huge success and Kyleigh recovered quickly by the grace of God! 

Today, the 24 March 2022 at 7am EDT (1pm SA time) Kyleigh will have her repaired completely Dr AZ Kaza.

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Kyleigh Milana Kista from Benoni, Gauteng, our precious 3-year-old girl, was diagnosed with a Complex Congenital Heart Defect at birth.

Her condition is known as Tetralogy of Fallot with Pulmonary Atresia, VSD & Mapca’s. This condition was first described by her Cardio-Thoracic surgeon as a monster in her chest.

This means Kyleigh does not have the valve that connects the heart to the lungs, the arteries that are meant to be attached to this value is free-floating and underdeveloped and not connected to her heart. She has a large hole in heart and survives on 2 collateral arteries of which one has already started to narrow severely. This all puts a lot of strain on her little body.

As a result, this is lowering Kyleigh oxygen levels causing Kyleigh to turn blue at times and remains very underweight. 

In November 2021, our World came crashing down. When we were notified by her doctors that nothing further could be done for Kyleigh in South Africa. Her only option was to wait for her organs to start failing. At which point a heart & lung transplant would be considered with very limited donors and experience on the procedure. With none carried out to date on a paediatric patient. 

The surgery is urgent and without it, our little girl will never get the chance to grow up and have a normal, happy, healthy life. 

After further research, it was discovered that the risks were quite substantial and the life expectancy after this procedure was very low. Would we be lucky enough to even get a matching donor in time? We searched for opinions with most hospitals in SA, only to receive the same feedback.

In absolute desperation to save Kyleigh's life, we decided to reach out to the Boston Children’s Hospital in the USA for a second opinion. They revised Kyleigh's case and restored all hope that our beautiful little girl could be saved.

They proposed an innovative technique to repair her heart, which they currently perform with great success at the hospital. They will try using Kyleigh current anatomy and reconstructing her blood vessels in order to flow effectively through her lungs while also incorporating her collateral arteries as part of this procedure.

This is our final & only hope. We need to raise US $295, 761.00, or just under R5 000 000. 

This cost includes:

• Cardiac evaluation prior to catheterization
• Hospital admission for post-cath recovery & related medical inpatient 
• Cardiac preoperative evaluation with physicians (cardiologist, cardio anesthesiologist & cardiac surgeon
• Cardiac Surgery and Intensive Care Unit & continuing recovery in a semi-private inpatient recovery unit
• 1 post-discharge visit with a cardiologist

Without this surgery, Kyleigh's chances are very low.  Your support could help save our precious little girl's life. 

A Thank you message from Kyleigh 

In The News

• BackaBuddy
• News24
• Star Newspaper
• Porky's People
• Radio702

Funds raised by this campaign, will be transferred directly to the Boston Children’s Hospital for their intended purpose. Our deadline is 30 January 2022 to make the full payment in order to allow for foreign payment release of 10-15 days. Boston Children's Hospital will only provide the visa letter once payment has cleared in their bank account. Only then can we start the visa application process for USA.

Kyleigh needs the surgery by no later than March 2022 as 1 of 2 collateral arteries which keep her alive today have narrowed severely.